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Showing posts from 2012

Fcuk fcuk fcuk FCUK

So. My blog title is ridiculous, when you think about it. I don't accept limitations, yet my hearing is a serious, shi**y limitation. It won't ever be cured, it won't ever get better and there's nottttthing I can do about it. I'm 26 and I still can't accept it.

So.... yah. I feel vindicated.

After 'passing' the test at Manchester and thus failing to become a CI candidate, I booked an appointment with a private audiologist. The following things happened. My audiogram was constructed, using earphones and not headphones, a totally different reading for my high frequencies was obtained; no high frequencies were detected in my right ear - which surprised me as in all my previous audiograms they were detected. I had a speech discrimination test done. An AB word list test. This is apparently the benchmark speech discrimination test done in CI assessment centres...... (Single speech sounds are spoken, then words in isolation - the listener repeats back what is heard.) When I described the test that I completed, comprising short sentences his jaw actually dropped and he shook his head, tres amusant. Well, not really - really frustrating to think that the centre had only deployed one testt!! Anyways - AB test, no visual cues with both hearing aids in with no background

So... I outperformed the average CI user

Really not a happy bunny any more. I cannot be bothered to go into great detail with regards to the initial assessment appointment that I had on Monday - here goes. Appointment started at 3. We discussed:  - My hearing history: how long I've worn HAs, what sort of education I've had and whether I felt that my hearing had deteriorated in recent years. - I explained that while I don't think my hearing has changed, my environment has and that I am facing challenging situations on a regular basis which are starting to really make me question whether I function effectively. - She did a hearing test.. y'know, bleep and click the button. Yawn. She then sat me a metre away from a speaker in front of me, slightly elevated and told me to repeat what I heard, left ear only/right ear only and then both. Heard very little with only the left, however I did manage to identify that most - if not all of the sentences began with 'the.' The sentences were all at most 6-

ThedayIlearnedIspeaktoofast aka The Ear Foundation CI Information Day

Today has been exhausting, in a very good way. I’ll try and outline everything that happened; hopefully it will make some sense! Hit the M6 at 6:50 this morning, jittery from a rather strong cup of coffee and trying very hard not to fall asleep...great start there, Abi! I’ll skip forward to Nottingham; nothing I can write can make dawdling down the motorway entertaining in the slightest. Arrived at the Ear Foundation on the stroke of 9, a full hour ahead of the actual start time – I like to be geekily ahead of time for anything. This gave me ample time to read my InStyle and faff about with my makeup in the car whilst watching for signs of life in the (rather nice) building. Eventually went in at 9:25 to be greeted by Lorna, the Family Coordinator for the centre who decorated my top with a rather fetching name tag, very swish indeed! Whilst waiting for the action to begin I sat in the conference room (at the front – as I said, geek) and met another member of staff called Lynd

I should be an audiologist

Today I had my CT scan, went without a hitch apart from my very loud and sudden ' Jesus Christ! ' when someone unexpectedly tapped me on the shoulders from behind... this was after I had been told to lie still until tapped on the hand. Jesus Christ indeed, scared me senseless! Visited the ENT department to query the cancellation of the follow-up appointment on the 25th. Explained to the rather hapless lady behind the desk that since I was going to Manchester to be assessed on the 30th that an appointment re-scheduled for the 23rd May was completely pointless. "Why?" Well, because they'll have received the CT scan by the time I see them... so any 'follow-up' is pointless? Cue this look of absolute "who do you think you're talking to" and me politely (but firmly) insisting on an appointment before the 30th and lo and behold, an appointment was made for Monday 23rd. Not surprised they cocked up my referral if that's the receptionist'

Good news!

Adam Levine is single again! *cue mad hormonal desire and wild flights of fantasy* ahem..... Also, after nearly four weeks of wondering just what the hell was going on with Manchester I have finally sorted out an initial assessment appointment... for April 30th at 3pm. Let's track back... Me, this morning, upon realising it's been a month since my 'referral.': "Wonder why I haven't heard anything from Manchester, why haven't they responded to my emails? Why is a unit for deaf people so obviously rubbish at communicating via email?".. I sent yet another email, to a different person, who then forwarded that email to annnother person, a Consultant thingummy. Consultant thingummy: "Apologies for the delayed reponse to your query. **** has passed your email onto me today. I have had a look through our records and it does not seem we have received your referral as yet so I would recommend chasing your ENT consultant to make sure it was sent or

My daughter, deafness and me

Hmmmmmmm, I wonder what you'll think of this? Link to programme So, I watched the above programme this morning and found it very thought provoking. I'll just put up a load of bullet points as my thoughts are rather sleep deprived at the moment! 1 - The most telling part of the programme for me was when her daughter got up and left the signing session, went and sat down and stuck her head in her hands. Guessing she really didn't enjoy having something shoved in her face and being confronted with someone who communicates in a way that is totally unfamiliar and scary. That made me think "hang on, she's not stupid, she knows she struggles" - and so when Rita met with the mother who explained about communication breakdowns it clicked into place. The little girl, at the age of five, has already developed a front - glossing over misunderstandings and distracting people with her 'all singing all dancing' nature. I think it was a shock for her mum to real

I know you can be overwhelmed, and you can be underwhelmed, but can you ever just be whelmed?

Points for anybody who can identify the origins of the post's title. My CT scan is booked for April 19th. Not entirely sure when I'm going to Manchester but hey, only 31 days to wait until the inner workings of my 'bitter, twisted' mind (geddit?) are revealed for the consultant to see. Well, technically, it's the cochlear and skull they're interested in, fun. Gotta love the Gaga

Damn, the ENT man has a lisp... what's he saying?

Appointment today with the ENT man. The appointment was set for 10:45 but the waiting room was rammed packed full of the elderly and the not so elderly and so I didn't get seen until 11. In that time I had the wonderful pleasure of watching 'Homes Under The Hammer' on a massive TV, just how many people actually enjoy this type of drivel?! The appointment lasted no more than three minutes - I kid ye not. Here's what happened: 1 - I was sat down, noticed a trainee gawping at me from the corner - lovely! 2 - ENT man began to speak, at this point I realised that he had a lisp - the kind where the tongue takes up the mouth and it's really hard to understand the resultant speech, I didn't clock a word of what he said so "Pardon? I didn't catch that - what did you say?" 3 - ENT man, on his wheely chair scooted the 5 feet from his desk and sat RIGHT NEXT TO ME, as in - our knees were touching - and explained, a lot more clearly the following things

I have a brightly coloured shell.

I’ve been sinking for a long time and the mud is up to my ears(in them) and I’m (fingers crossed) gonna be pulled out the mud and hosed down. It might take a year or two but nothing, nothing is a bad as being so separated from everything and everybody, everyday. I am a hermit but not of my own making. I have a brightly coloured shell. Taken from: http://cyborginafield.wordpress.com/2010/04/07/hello-world/?blogsub=confirming#subscribe-blog That's all.

Vot is a CI?

I shall spare you from the very detailed descriptions as having read many other blogs, I know that it can get very complicated.... A charming little video A hearing aid amplifies sound so that the poor addled inner ear hairs/receptors can 'pick up' what it can. You 'hear' through the aid, and then through the process of working out what you've heard - not terribly efficient - which is why I'm forever speaking too loud/soft/quiet - simply because my auditory representation of the world is limited by the technology resting on my ears. A cochlear implant ignores the poor addled inner ear's ability to pick up sound and ensures that sound is converted to electrical signals for the brain's enjoyment. The implant itself is a small wire with up to 24 electrodes that is inserted into the cochlea. The average normal ear has up to 20,000 hair cells and receptors to provide you wilth a delicious sensory experience, I'm told that the brain can do wonders wi

And so it begins...

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Overview: I am profoundly deaf and have been since I was born a very long time ago...ok, 25 years ago. My losses are measured in decibels - that means, my nerves/brain perceive a tone (hertz) only when it is loud enough... in my right ear that means I have a loss of 85db, in my left it is 102db. My left ear has the worse low frequency sound perception but marginally better high frequency perception (conversational tones) - my right is the opposite - better low, rubbisher high. I was meant to have a cochlear implant as a baby but because I had hydracephalus (and an abnormally large head) my parents decided against me undergoing more surgery as allegedly, being dysfunctional and requiring loads of interventions near enough finished my parents off, oh and me! My most vivid memories of my childhood involve being in constant contact with a woman called Natasha who was responsible for training me to speak through constant, relentless, soul-destroying at times and plain exhausting spe